Wednesday, December 23, 2009
Happy Holidays!
I went to a concert last Thursday and I had a wonderful time. As you all probably know, Christmas is Friday and although I'm "Dreaming of a White Christmas" I probably won't be getting one. Also, my birthday is on Sunday! I'm excited for it.
Most of all, I wanted to thank the girl scout troupe at my brothers school for making me a beautiful blanket and my school for still supporting me. I also wanted to say thank you to everyone that has given me something this Christmas and everyday this year whether it was a material gift or just thinking about me that day. Thank you for showing what Christmas is all about; giving. Thank you for showing what life is all about; love. Merry Christmas and a Happy New Year!
Love, Daniela
Tuesday, December 1, 2009
Wednesday, November 25, 2009
Everything!
Let's start off with the basics, tomorrow is one full year from my diagnosis. It really feels like just yesterday that I was sitting in the hospital, waiting to hear what my MRI readings were. Today, I was reading my posts from July, reminding me that I have come such a long way. Reading those posts, I remembered when I couldn't talk, move my legs, things like that. If you look at me now, I am still a long way from 100% but, I know a few months from now I will be thinking of how much more I've accomplished. In July, I made a post called "Time?". In that post I included a quote that I want you all to remember.
"Time is like a river... you cannot touch the same water twice, because the flow that has passed will never pass again. Enjoy every moment of life." - Unknown
That quote is very dear to me. But, there are moments for joking and then there are moment to be serious. There are moments to cry and moments to laugh. Soak in every moment, because it is a blessing to cry, laugh, or feel sad, happy, ...etc.
I have been having so much fun with life. A couple weeks ago, my friend won tickets to a Justin Bieber concert. I shall remind you that the last time he saw me, it was July when I couldn't talk or move my legs. I also was still on steroids and I have slimmed down quite a bit from then. Well, when he saw me, he definitely remembered me and he was purely thrilled to see how much better I looked. It made my day to know that he really, truly, honestly cared. He had his body guards push the crowd back so me and my friend could get through. It made my day, I was ecstatic.
On Nov. 20, I went to the theater and watched from The Twilight Saga: "New Moon". It was on opening day too! Most everybody knows that I am a huge Twilight fanatic. If you're a twilight fan to, I'll have you know that I'm wavering between Team Jacob and Team Edward. The movie was truly amazing in my opinion.
The other day, my tube was clogged and we were about to go to the hospital to change it. I was very upset and I was crying and crying. Finally my mom went outside to get the car ready, and I was inside crying, I really did not want to go. It was at that moment I looked up and said "If you love me, you'll take the pain and sadness away". Then my mother walked through the door and I asked her to try to put water through my tube just one more time. When she tried to put the water through the tube, it went through like nothing was ever wrong with it. I looked at my mom and frankly we were both astonished and thrilled. It reminded me of the birthday gift I bought my mom. It was a plaque that had these words on it, "Everyday holds the possibility of a miracle."
For Thanksgiving I will be thankful for what has been given to me, and everything I have because everything could be a lot worse. I want to wish everyone a happy Thanksgiving and a request for thoughts and prayers on December 2nd when I go for my next MRI.
Love, Daniela
Monday, October 26, 2009
Relax
I'm excited for these next couple months. I have family and there's Halloween, Thanksgiving, Christmas, and let's not forget, my birthday!! I hope you all have a great day and weekend! =)
Love, Daniela
Tuesday, October 13, 2009
I passed!
First of all, many of you were wondering how I did on my swallow test and I did pass! So, I'm still on the feeding tube but I am allowed to eat soft and/or pureed foods. Even though I passed the test, I'm scared to eat. I'll have to practice a lot before I become comfortable. I appreciate all your prayers and thoughts, and I'm hoping to get a lot more! I thank each and every one who is supporting me! I am so blessed to have the friends and family that I have. I'm staying positive and the people who are around me now are a part of that and for that I am thankful.
Love, Daniela
Friday, September 25, 2009
News
Love, Daniela
Tuesday, September 22, 2009
Finishing Strong
My Uncle Nate sent me this great power point titled "Finishing Strong". It made me realize that almost nothing is impossible. There are so many people who, after accidents, were told they couldn't sing, walk...etc., and they were so determined to do the "impossible" and it happened. Like I am determined to start singing and playing tennis again. It'll happen!! Ever since I was little, I was taught to never give up. In fact, my dad wanted me to join the debate team in high school because I was so good at proving my point!:) Soo, never give up!
Love, Daniela
Friday, September 11, 2009
News
Ok in my opinion, the less I know about my cancer, the better. All I really want to know is that I have it, where it is, and what it's called. Because the more I know, the more I get intimidated. Which is why, from now on, I don't want to hear it. When you have cancer, you don't have time to be intimidated let alone enough energy! I'm going to make one thing very clear to my body, I want my tumor out and I want it out now. I don't know why I'm saying "my" tumor. Because it's not mine nor do I ever want it to be mine. I have to show myself that I am in control of me. Not the tumor. God has given me strength that's unfathomable. Now I have a job to dig deep and pull through. I hope you all have a great weekend!
Love, Daniela
Friday, September 4, 2009
MRI
Also, be sure you believe. Make sure you never leave home without hope and faith.
Love, Daniela
Thursday, August 27, 2009
Poem
Soft cold layers.
Sparkling white grass.
White drops of crystal
Dripping from the sky.
Comforting cool weather.
Relaxing white flakes
With wonderful designs.
Funny interesting kids playing.
The mellow crackle of the fire.
I hear the pots steaming and someone
Is pouring hot chocolate.
The wind is whistling loudly.
Why does it melt so fast?
What am I going to do?
Play, play, play?
I have wondrous thoughts.
Warm hearted feelings.
Snow, snow, snow.
I wrote this 6 room poem originally for school but I really like it and thought you would too.
Wednesday, August 26, 2009
=)!
Love, Daniela
Wednesday, August 19, 2009
Wow
Today I found an entry on my computer diary from the day before school started, last year. What caught my eye in it was the fact that I said that my head hurts really bad and I don't know why. I thought wow. It's really weird when you look back on a diary. And it was weird thinking that I had a tumor growing on my brain every day, and I didn't know.
Today our dear friends, Ms. Joyce and Mr Isaac, are moving. We're definitely going to miss them! They have been amazing!
School started for me this week and I'm so happy to be busy again! I love having things to do and getting them done. It makes me feel good! I like keeping busy.
Love, Daniela
Sunday, August 16, 2009
Miracle!
" To accomplish great things, we must not only act, but also dream; not only plan, but believe."-Anatole France
Or as my teacher had a poster in her class that I loved. "Shoot for the moon! Even if you miss, you'll land among the stars.". Always have big goals! You can atleast accomplish most of it if not all.
Love, Daniela
Tuesday, August 11, 2009
Sigh of Relief
I had a very hard morning today. It truly was awful. First, I woke up feeling fine then out of no where I threw up. I was soaked. As if that wasn't bad enough, we realized I spit my tube up - all the way from my stomach. It was ridiculous. Then I was still very sick and we had to go to the hospital. After my last experience with getting my tube changed, I won't let anybody change it except the radiologists, because they have the camera to see where they are going. But because I was still very sick, my mom couldn't drive, she had to stay with me. Thank God we have our dear friend, Ms.Joyce. Her and her husband, Mr.Isaac, are more like grandparents to me. They would drop anything and everything for me and I love them dearly. Anyways we arrived at the hospital and we had to call our nurse Maggie to schedule the appointment. But most appointments are scheduled months before the actual date. So of course, there was some problems with me not having an appointment. But as most of you know my mom, when it comes to her kids, no one says no to her or stands in her way of what we need. I admire her strength and determination. My mom made sure I was in, in 5-10 minutes, I had not had anything to eat and I was very nausea's with no way of getting medicine to help with it. Getting the tube put in was very uncomfortable but it was over in a few minutes. I'm so thankful for Maggie, my nurse, who did so much to get me in there. The doctor who got my tube in, he's phenomenal. He's very gentle and kind. Again I was blessed with wonderful people.
Love, Daniela
Saturday, August 8, 2009
I'm back!
I have been thinking, do you remember in Hercules, the old ladies would cut the twine when a persons time on earth was up? And how when Hercules went into that pool of souls, risking his life for his one true love, the old ladies tried to cut his twine but it wouldn't cut because he was a God. I'm not sure if I believe in all those Greek Myths but to think someone cutting my string of life and not being able too, it just makes me think. I'm not sure if it makes sense the way I put it but try to understand my crazy mind.=)
I also was browsing around youtube, and found this song that I have always loved but now I really can put meaning to it. I want to dedicate it to my mother.
The lyrics mean a lot to me and I never really had a meaning for this song. I just liked it, but now, today, I listened to this song and almost cried. My mom means the world to me. I love her to death!
Love, Daniela
Monday, August 3, 2009
Worry
"There is no use worrying about things over which you have no control, and if you have control, you can do something about them instead of worrying."- Stanley C. Allyn
Your always going to have worries, but your not always going to be in control, therefore whatever happens is obviously meant to happen. Otherwise you yourself could and would of stopped it. I never know why things happen - none of us do. but there's always a reason whether or not you know it or not.
I didn't write this weekend because I was extremely nausea's from my antibiotics. This week, starting tonight, I do oral chemo which I do 5 days out of every month. Its definitely not fun stuff. One of the nausea medications just makes you feel like you have the flu and want to sleep all day. But I'd rather feel that then throwing up. So I guess I have to suck it up for the great or good. Basically I might not write for a couple days, but do check in to see if I did write because other days are different than others.
Love, Daniela
Friday, July 31, 2009
For One More Day
I thought you would all enjoy a story I wrote in 6th grade, after my 12th birthday. It is very dear to me and I hope you enjoy it.
FOR ONE MORE DAY
By: Daniela Joel
If life granted you one more day, what would you do? I know what I would do. I would spend the day with my dad, an astounding, stimulating person. Alas, he died two years ago. If you have ever lost a loved one, you would know that your heart is constantly filled with curiosity. But that curiosity leads to a person you never knew. That person will unleash a strong little flame inside of you that is going to grow and make wonderful, new things that will help exceed who you are. With all the nurturing that flame is going to experience it will grow, and grow, and grow. In time, instead of that heart full of curiosity and anger, it becomes a heart full of acceptance and understanding.
Have you ever wanted to ask a question you knew could never be answered? Well I have too. That question was why do people that love you so much, leave you so soon with out a goodbye. I asked God so many times. He never answered me until one day, one remarkable day. He told me he needed someone special. As the words “someone special” echoed in my head, I thought about those oh so fragile words. Every girl says her dad is special. Mine really was. People always ask me why I think this, I just smiled and finally said the words I’ve been waiting to say, I don’t think, I know. My Guardian Angel told me so.
My dad had curly, dark brown hair and shadowy brown eyes that sparkled every time he smiled. He had wide broad shoulders and long arms that could once lift me up and rap around me like a warm, soft blanket, with hands that connect the soft finger tips that could once hold me like a cup when I was just born. It’s hard to believe that the baby that had blonde hair and sky blue eyes is now my dad with the big brown eyes and curly black hair.
Over all, some of the best times of my life were spent with my dad. Like the time I signed my first “autograph” when I was about seven years old. Or the time when he would tickle me, when I was mad at him, until I would forgive him. Some kids don’t realize that the soft, tender touch of your dad could mean the whole world to you if it was gone in just a swift motion of the blink of your eye. This man in that picture was a goofy, sensitive, tender, and loving kind of person. He never gave up. He was my dad. What he most treasured is what he wanted, and what he wanted is what he got. I was his only daughter. He wanted me. He got me.
For one more day…he could have me. He could rap his long arms around me once again. He could look at me one more time with those big brown eyes and say I’ll never leave you again. For one more day…this is what I got. When I hear the whisper of his love and feel the wind blowing on my face, I could hear him, and somewhat distinguish him reaching with those long, soft arms and big brown eyes. He said with a radiant smile, “I will never leave you.”
Love. Daniela
Wednesday, July 29, 2009
All I have to say is Thank You God!
Love, Daniela
Tuesday, July 28, 2009
Impossibility
"The greatest pleasure in life is doing what people say you cannot do" - Unknown
That is my new life motto. It's really amazing to prove the impossible or the impossibilities of the only human mind. Today, I really felt like a normal, teenage girl. I giggled and laughed with my best friend, Corry. I'm starting to be the sassy, sweet girl that I have always been and always will be.=)
Love, Daniela
Sunday, July 26, 2009
Q and A
2) Music definitely I was pushed into but loved it right away. My father influenced me the most as he was my first teacher. As a lot of you know, I sang and played the piano at my dad's funeral. I also wrote him a poem, if you'd like me to post it please let me know. I don't even know how I maintained my composure, it was the hardest thing I have ever done. I know the second I got of the stage, I lost it. It effected my life big time because there was school and I just moved up in tennis to a higher group. Not to mention it was right after my 9th birthday.
3) If you know me, you know that I absolutely love a good book. One of my favorites is the Twilight Saga and Harry Potter. I love them because I love living in a different world and reading those, it was definitely a fantasy trip. Right now I am reading The Lightning Thief, recommended by my doctor who as well loves books, I am not yet far into it, but so far its a very good book.
4) I love the people that are in my life. My mom always with me and I wouldn't have it any other way. I love my coaches they have been so supportive. My therapists are amazing though I'm not working with them at the moment, they always find time to visit. My friends go out of their way to keep me entertained. My family has been absolutely amazing. Seriously if I were to thank everybody, I would literally have to write a book.
There's a little bio of my life! I hope you learned a little more about me.
Love, Daniela
Saturday, July 25, 2009
Things Will Get Better.
When things aren’t going well for you
And times aren’t what they should be,
Just focus on the positive
And think of what could be.
Acknowledge what has happened.
Don’t lose sight of lessons past.
But don’t allow the negative
Distracting thoughts to last.
Take what you’ve learned
And start from there.
Draw strength from your frustration.
And let this added sense of purpose
Be your new foundation.
It’s hard to follow any plan
Precisely to the letter.
Though life right now is difficult,
Things will in time get better.
My mom found this amazing poem while cleaning out our basement. It is like it was written for me! I really don't have much to say about this poem because it really says it all. I hope you enjoy it.
Love, Daniela
Friday, July 24, 2009
Gift
Facebook Friends
Love, Daniela
Thursday, July 23, 2009
Group
Yesterday, I did write a blog, a very long one I might add, but I didn't post it. Yesterday I was a little upset because everyone was asking me who my new teacher was for 8th grade. But I am not upset anymore because I've realized that yes, I'm going to miss my my friends but I have a really cool teacher for my school and I'm very happy to have her. I'll have my time for my first day of school too.=)
I actually am very excited for school to start, I'll have something to do during the day, and finishing homework will give me that accomplished feeling I used to have.
I do want to point out that the point of my blog yesterday was the fact that I question and wonder about every event in my life but I wouldn't ever change them. I am who I am because of these things and I am so very content with myself.
By the way my mothers' birthday is Monday but I'll be in the hospital with her receiving treatment.=(
Love, Daniela
Tuesday, July 21, 2009
Months
"December is the most toughest of months. Others are July, January, September, November, May, March, June, October, August, and February."-Mark Twain
Everyday is a struggle no matter what condition your in. It's how you face it that's going to make the difference.
I am starting to really feel like a normal teenager again. Before, I really had no emotion that I had before I was diagnosed. If you have a Facebook you should add me as a friend! There is a group that I have just joined and I encourage everyone else to. The cause is based on 'Curing Diffused Intrinsic Pontine Glioma". This is the kind of tumor I have and right now there is no cure. It is a nasty tumor that rips away the lives of kids under 10 and I am a rare situation. The best way to help is to tell friends and family and hopefully someone with the ability to discover a cure gets notified.
Love, Daniela
Monday, July 20, 2009
Grrr...
Today my Physical Therapist stopped by. I had fun showing him all the new things I can do. The greatest day of my life will be when I walk to my doctors appointment. As someone very wise(whom I do not know)said "The greatest pleasure in life is doing what people say you cannot do." I hope you've noticed how feisty and determined I am. Although these characteristics were very subtle before, they've always been there and always will.
Oh! I forgot to tell you! Today my brother came back from tennis camp with a little earache. Well he'd been swimming so my mom thought "swimmers ear". Oh boy was she wrong. I used to get swimmers ear a lot, so we had these drops. My mom put one drop in his ear and I thought someone was being murdered. My little drama "king" screamed that loud! But I didn't remember the drops being painful? He even demanded we call 911. We took him to the doctor and turns out he had a ruptured eardrum that needed to be drained. Anyways when he came back like a horse, I had to laugh at myself for being so worried.=D
Saturday, July 18, 2009
Fear Nothing.
I don't understand why when you most likely won't make it, doctors tell you. Instead of living your last hours living to the fullest, all your thinking is "Oh my God. I'm going to die." And you stop fighting because you've been told by a "super official doctor" that you're going to die. You start to lose the most important thing-FAITH. It's faith and hope that get you through hard times. Doctors are not God. They are only human. Thank God I was unaware in the hospital and don't remember anything. I am grateful for that.
Love, Daniela
Friday, July 17, 2009
Opportunity
"In every difficulty there's an opportunity." -Albert Einstein
Last night I cried and tears came out! I haven't seen my tears since before I was diagnosed because of the tumor. I love my brother to death but sometimes he gets mean. He gets tired and cranky but I wonder what it would be like if every time I got tired I got cranky. I would probably always be cranky. To me it's not really an excuse to be bratty, not saying that I don't get cranky. I do. It's normal. But I guess what I'm trying to say is that when your having a day more difficult then usual, try and find the upsides. It'll really help your day go by.
Love, Daniela
Thursday, July 16, 2009
Competitiveness and Dedication
It's like one of my tennis tournaments. You don't go just to play. You go to win! Like me, I'm fighting, not to lose, but to win! I've always been very competitive and this is just another tournament as my Coach Ashley said. He also said "Pain engages the brain." And honestly I thought he was crazy to think that until now. He was right and I'm sorry I didn't listen to that sooner.
I am so thankful to have my mom as my "nurse." She has been there for me through everything and it makes us closer.=) A day never goes by that I don't thank God for having her in my life. She's a beautiful, strong, independent woman and I'm proud to have her as my mom.=) I've learned everything from her and she continues to amaze me.
Love, Daniela
Wednesday, July 15, 2009
Purpose
"For everything there is a season,
And a time for every matter under heaven:
A time to be born, and a time to die;
A time to plant, and a time to pluck up what is planted;
A time to kill, and a time to heal;
A time to break down, and a time to build up;
A time to weep, and a time to laugh;
A time to mourn, and a time to dance;
A time to throw away stones, and a time to gather stones together;
A time to embrace, And a time to refrain from embracing;
A time to seek, and a time to lose;
A time to keep, and a time to throw away;
A time to tear, and a time to sew;
A time to keep silence, and a time to speak;
A time to love, and a time to hate,
A time for war, and a time for peace." - Ecclesiastes
I told my mom this morning that I don't think God intended for me to die. I am here to do this. To inspire people and keep them going.
People can't believe either that I am only 13. Well heres a quote to explain that.
"In the end, it's not the years in your life but the life in your years." - Abraham Lincoln
I have not lived the life most teens have. Therefore I am not like most teens. Though these events have been unfortunate, I am very lucky to have learned these lessons.
Love, Daniela
Tuesday, July 14, 2009
Adventure.
I'd like to share with you a couple quotes that I find very motivational and helpful.
"Life is either a daring adventure or nothing." -Helen Keller
I have learned that every event in my life is not unfortunate but an extra bump to make me stronger. An adventure. I have learned to not be angry at these "adventures" but instead to take them with a grain of salt, re-find my "path to happiness," and move on.
Which brings me to the next quote.
"Happiness is not a matter of events, it depends upon the tides of the mind." -Alice Meynell
Very true. When you think positive, the outcome is most likely going to be positive.
People always ask me if I'm angry at God. My answer is ofcourse not. I'm not going to turn in to one of those bitter, old ladies who are the way they are because there always blaming someone, and it always starts with blaming God. I am a very happy person and by all means have no one to blame for this. It is a challenge and I'm always up for a challenge. =)
Love, Daniela
Monday, July 13, 2009
Happy =)
Before I was diagnosed, I was extremely depressed. I also was having severe anxiety. I even called my best friend in the middle of the night. Now, I'm starting to feel happy again. Its been so long since I've felt this way that I almost forgot what it feels like. Here is a quote that relates to my life perfectly.
"Our minds are as different as our faces: we are all traveling to one destination;--happiness; but few are traveling by the same road." -Charles Caleb Colton
We all have our paths to happiness, but we have to find out how to get there.
Love, Daniela
Sunday, July 12, 2009
Time...?
"Time is like a river...you cannot touch the same water twice,because the flow that has passed will never pass again. Enjoy every moment of life." -Unknown
Our life goes by in the blink of an eye. All we worry about is work, money,...etc. We never take the time to cherish and savor each moment. Having a glimpse of death has made me realize that life can be taken away just like that. Knowing that, I have a greater appreciation for my mom and people who choose to give their precious time to me. Wether it's thinking about me, spending time with me, or praying for me, you are spending time to do it and for that I thank you.
Live, Laugh, Love.
Love Daniela
Saturday, July 11, 2009
What a day!
1. "We all have to get through the storm before we can see the rainbow."-Unknown
2. "We are all just a little piece of blue sky."- My sisters Keeper
3. "People to weak to follow their own dreams always find a way to discourage you." - Unknown
All very true and extremely well put.
Later on I read an amazing book. "Killer" by Sara Shepard, Pretty Little Liars series. Book 7
I would highly recommend the series to anyone who loves teenage gossip and a good murder mystery.
My mom has to lift me to stand, and hold on to me. So today, when she did that, I stood up straight. I was shocked to see I had to look down to see my mom's eyes. Had I grown that much in 7 months??!! My sister was around and she definitely couldn't believe her eyes. Not only was I taller than my mom but i was taller than my sister too! At least by half an inch. For those of you who have never seen my sister in person, she is 5'7.
Now I am going to end my day with a movie with my mom. "Premonition". I could safely say I've been blessed with a wonderful day and wonderful people to share it with!
Love, Daniela
Friday, July 10, 2009
Catch Up...
I appreciate everyone's prayers and I really hope you guys keep it up.
Love, Daniela